The D-Word

There’s a new book out about dying and death. It’s called, appropriately, The D-Word. Now, there’s a heap of books out there about long-term care of the very ill; there’s another heap about bereavement. We don’t urgently need more of them. But there’s hardly anything out there about grim D. We do urgently need more D-books.

I didn’t feverishly tear it free from its Amazon packaging. Two reasons. I know the author, Sue Brayne, slightly. On a personal level I like her a lot. She’s absolutely not one of these too-nice-to-be-true people you can meet too many of in the death industry. She tells it as it is. We met at a conference of conjoined quangos which has now re-badged as Dying Matters. I blogged about it intemperately at the time. I sounded off in the street afterwards as I walked with Sue to the station. She made no objection to the f-word, either. I honour her for that. I very, very much don’t want to not like her book.

Second reason? The father of a good friend went to hospital a fortnight ago. After conducting batteries of tests, the people who work miracles, the doctors, had that conversation with the family where they make it gently clear that, this time, there’s no cure, just care. He’s going to die. Probably quite soon. Unthinkable? No, they all knew it would happen sometime; he’s been getting old fast recently. But thought about? Not much. Some things you don’t think about till you have to.

So what my friend, and his family, and his dad all need is somewhere to go where they can find out about this business of dying. They need information. And because news like this can make you feel very lonely, very disconnected, they need to know how it felt for others, too, so that they can set their experience in a broader context. And for all the well-meaning advice I have been able to offer them, and not very much at that, it’d be so much better to have a book to recommend.

Come to think of it, I need some advice, too, on how to conduct myself towards this dying man and his family. I like them all very much. I’ve known them for years. They are good people. It’s going to be really hard.

So: reviewing Sue’s book isn’t an exercise in judicious objectivity. Bluntly, it had better be very good or I’m going to feel badly let down.

And the good news is that it is superb.

Sue sets out her stall: “The D-Word is based on the lived, felt, human response of what it’s like to die.” Her method? To tell it “through the personal narratives of relatives, friends and carers”. Sue draws conclusions from these stories. She also gives us lots of useful information and, by doing so, a language of dying. Literally. A vocabulary. So that we can talk about it and understand the hazards of not talking about it – and the hazards of talking about it in treacherous euphemisms.

Sue covers the ground. A little potted history tells us how we got to be so death denying. She examines the value of an existential explanation – a faith (though she doesn’t cover atheism). She examines how professional carers regard dying. There’s an excellent chapter about survivors of violent or sudden death, what helped and what didn’t. She talks about both where to find support and how to give it. She tells us how to support the dying. And she tells us what dying feels like, much of which is the fruit of her years of research with Peter Fenwick. She does all this in just 165 pages. She has interviewed the best possible people, and must be congratulated on finding them. She has even tracked down one of the UK’s best and nicest undertakers, James Showers, whose definition of a funeral is, I think, both moving and brilliant. A funeral, he says, transforms “a fact – that someone has died – into a ritual that is authentic and relevant to those who were close to that person, to help them say goodbye in public and with meaning ... to turn their grief into something beautiful.”

I don’t know how many copies Sue has sold yet – it’s early days. She’s just sold another. I am sending one to my friend as soon as I have posted this. Thank you, Sue.

You can buy the book from Amazon. As recommended as it gets. Find it here.

Gregarious grief

Undertakers seek to be well thought of in all sorts of oblique and coded ways. Instead of proclaiming a USP and telling the world why they reckon they’re the best, they do stuff they hope will have a spin-off. Much of this has to do with cosying up to their target market, the old and infirm. So they sponsor bowls competitions and hope to flog a few pre-imminent-need funeral plans. Or hold schmoozy sing-songs in care homes. The olden folk shed years, let themselves go, have a lovely time, led by the twinkle-eyed undertaker at the keyboard, Grim Reaper as Pied Piper. You’ve got to chuckle—death is a sovereign provoker of mirth—but you’d be wrong to be cynical. There’s no shame in doing well by doing good, none at all.

One of my local undertakers has tried out two new oblique marketing initiatives in the last year. The first is sending out silver stars to relicts, on which they are invited to write messages, send them back and have them hung on the undertakerly Christmas tree. What sort of uptake do you think that gets? Let me tell you, those stars come back in droves. Lots of people don’t actually pop in to see their star—but it clearly gives them comfort and joy to think of it in the companionship of everybody else’s.

The second new initiative was pioneered last year: a carol service. Again, there was an unexpectedly big response which, this year, tripled. There was even one woman from out of town, visiting, who heard about it and came along too. Venue? The garage, freshly painted; chairs courtesy of the sea scouts; singing turbo-boosted by the hospice choir; unsightly areas curtained off by sheets of Crem-film (customarily used to line coffins, but what the eye knows nothing of, the heart does not recoil from). It was as multi-faith as it could have been, but too big a gulf to bridge for our many Muslims. I was asked to be the MC on account of my non-aligned status. That was a mistake. I have no presence of mind in such situations, nothing of the Dermot O’Leary (memo to self: you can’t put in what god left out). I foozled and hashed it, frankly. But the evening was a huge success in spite of me. Our C of E clergy were as inclusive as only the C of E can be, lovely people and incredibly hardworking. One of them declaimed “Do not stand at my grave and weep” as if it were a call to arms. I had no clue what he was really thinking.

I don’t know that I could have predicted that this tentative PR initiative would establish itself as an important annual event. That it has done so is certainly testimony to the quality of an undertaker whose premises do not carry associations of surreality and utter dejection.

But it also meets an important need. Forms and observances. Rituals. Coming together and fellowship. Active commemoration. Vital.

Immediate grief

This is a guest post from Jonathan Taylor, an independent funeral celebrant in Totnes and occasional funeral arranger and conductor for green fuse. He is a regular commenter on this blog.

I'm in turmoil.

My son's girlfriend's sister died this afternoon at 4.30. She was hit by a bus
about ten days ago, and we were all just starting to feel optimistic about her
survival, if still very uncertain about her quality of life, until today.

And now there is no life whose quality we have to consider.

I want to tell you how it is affecting me, in case it helps you to hear it as
much as it helps me to get it out into the light. Lovely, delightful, young,
sassy, pretty, infuriating, loveable as she was, she was not my relative, and I
didn't even know her all that well. I'm only on the peripherals of the family
web, which is shaken to its core. I don't seem to be grieving for any one
person I can identify, least of all myself, not yet anyway; but this is as
profound a grief as I have ever felt. The first wave is over, and I'm writing
this while waiting for the next one. Wave of what, though?

While watching myself crying, shaking and screaming into a cushion, I felt like
a wolf, hearing the call from my pack members howling from the mountains, 'all
is not well, leave what you're doing and attend, every one of you.' It's a
primal thing. Animal.

And right now, I'm feeling a deep envy for the animals. Instinct tells them
what to do, without question. They are unencumbered by intellect, with its
attendant beliefs and values and morals and judgements and literature. They
don't have to wonder about what's going on, they just know. And perhaps best of
all, they can howl out loud their unrestrained regret, without having to think
about the neighbours.

So if I've ever expressed an opinion on this blog, dear readers, I take it back
forthwith. I just don't know. This is awful, but even now I can see it's a
good thing that's happening to us all, given that she's already dead.

All for now, with love,

Jonathan

Do chimps grieve?

I don't know if you saw this picture/read this story. It's certainly an affecting picture (click on it to make it bigger).

Read the story in the Daily Mail here.